This is Random Tuesday Thoughts and I am co-hosting with Julie, Ane, Stacy and Raven, while Keely is still on sabbatical from Random. Make sure you random blog at your place and link up below.
- Life has been a bit of a whirlwind the last several weeks and even months. You would think the sudden move to Georgia and the new pregnancy would be enough craziness, but shockingly, there has been much more to make our lives crazy.
- Other than being really sick the first trimester, everything was going along smoothly. All the tests were coming back great and we were over the moon with this surprise of pregnancy!
- Then the task to find a new doctor. With the suggestion of two local residents, I booked my first appointment with Dr. B on what I believed to be day one of my 15th week. Long story short… this was NOT the doctor I wanted. She has terrible bedside manner, and she made several mistakes regarding me and my care in just the first visit. Including insisting I was 16 weeks along, not 15. But not changing my due date. {confused much?}
- She then pushed on me to have another host of testing done to test for Neural Tube Defects, Down Syndrome, and Trisomy 18 saying that I had to have it done in week 16. I insisted that I had just had all of the tests done the first trimester but she maintained that there was no way I could have.
- Then I went to see the high risk specialist, Dr W. for the first time. We walked into her office (after a 3.5 hour wait and an ultrasound confirming it was a boy) and the first thing she said was “ok, so you were referred to me because you screened positive for Down Syndrome, correct?”
- Jaw. Drop.
- “No, we are here because I am a high risk pregnancy, not anything about down syndrome. You must be mistaken.”
- But, she maintained that it was correct, I sobbed so hard I missed every other word that she said. Pieces that I caught were “If you would like to terminate…” and “85% chance he will have Down Syndrome” and “Amnio is too dangerous and presents a 30% chance of complication and/or death”
- I am still left with utter confusion and frustration. How could this doctor have just seen my moving baby boy with his strong heart beating just moments ago even think, let alone say anything about termination??
- So far I have only been able to gather some facts. I immediately called my doctor in Colorado to find out why my first trimester screening came back fine and why was I being told this information, especially in such a callous way. Dr. M of Colorado said that I had come back 1 in 5644 chance of Down Syndrome and that something wasn’t right.
- I am working hard to try and get answers. But so far I am just focused on, “no matter what, this baby boy will be perfect.”
- I have an appointment Thursday with my new OB, Dr P. (confused yet?) as I enter the half way marker of my pregnancy at 20 weeks. I am scared but hopeful.
- I know in my heart that everything is going to be ok. And I am very calm about it. The part that is still making me crazy is that these doctors are ALL OVER THE PLACE! And I need solid answers.
- If you know me well then you know I battle bipolar disorder, among a host of other crap that has been attempting to take over my life since birth. I have good days and bad days. Lately I have had a few really bad days. It’s not easy. But I am not very vocal about it. It’s easier to hide and pretend than speak about it out loud. Depression is a lonely place. One where it is easy to allow your mind to take over and tell you things that aren’t true. I am not very good at speaking about it, although I hope to one day be better. This post by The Bloggess felt like it came from my heart. I sobbed reading it and even printed a copy to keep with me. I draw inspiration from it. Whether you suffer from bipolar or depression or don’t, I think everyone should read it.
- Thursday last week, Dr W’s nurse called to tell me that my blood work had come back. And that I tested positive for the MTHFR gene mutation. (google it) And now my life has taken another sharp turn. While it provides a lot of answers, it also adds a host of new questions. I am at a high risk for blood clots, heart attack and stroke. For the rest of my life. But this may explain why I have lost so many babies.
- Like I said… whirlwind.
- Christmas was spent in Pittsburgh with Tanks family. It was really nice and I am glad we were able to do it this year.
- We were hoping that Buggy was going to be going with us this year but she ultimately decided not to. It was a huge disappointment for me. I have never spent a Christmas with her. It makes me sad to know that we probably never will.
- Tank and Monk have been sick for a while. And now I have finally caught the cold too. I just hope it doesn’t hang on for as long as it seems to be holding them. I can’t go 3 weeks with this cold. Ugh!
- I haven’t even taken a pregnancy picture in a while. So much going on, I just sort of lost track of time. I think I will do that this week. Time to update my photo album. I will be half way at 20 weeks along on Thursday! Wow time is flying by!
This is all I have the strength for today. We are having lunch with a new friend and her son in town today. I should go make myself presentable.
Make sure you post your own madness…. err randomness and link up below.
Have a fabulous Tuesday!











{ 24 comments… read them below or add one }
wow.. your post made me all teary.. i’ll be praying that everything is okay.. no matter what your baby boy is beyond loved and wanted..
i think i might have that gene mutation, but have never been tested.. my goal in the next few months is to be tested.. but it would definitely explain alot.
thanks for sharing cass!
xoxo
Read into it. It’s pretty amazing. The test isn’t expensive either if you opt for it.
xoxo!
Twitter ID: mishelle42
January 3, 2012 at 10:52 am
Well DAMN!! Just damn.
I read her post the other day and sat and cried. That was 2 of her posts in a row that sent me to tears (did you read the one before it on the picture?) she’s right. She’s very right, there never seems to be a celebration for those that survive their own troubles – and there bloody well should be.
Frankly, sometimes just getting up and being around people, being happy for your children instead of crawling back into bed when all you want to do is crawl in and not move – deserves a freakin party.
Babe, it says a lot that you can take all that you have on and get up every morning, for that I applaud you.
Your strength level astounds me.
M
Aww thank you! I do not feel strong at all. I feel like the weakest person on earth.
XOXO
Twitter ID: mishelle42
January 3, 2012 at 2:29 pm
Babe – you get up every day, make a good life for your son, your hubby and yourself… that’s a LOT of strength.
M
<3
Oh my goodness! I really hope everything is OK, Cassandra. Your boy will be beautiful.
Kristina P.´s last [type] ..Merry Christmas!
Thanks darlin
Twitter ID: mylife_itsgoing
January 3, 2012 at 12:40 pm
For me, the uncertainty that all these doctors are providing is what would make me the most stressed. I would want answers and concrete information. It sounds like you are getting none of that. Stay strong and good luck. I think I’ll go google that MTHFR thing now.
That is exactly what is making me so crazy! Thanks!
Twitter ID: RandomCoolChick
January 3, 2012 at 5:05 pm
I’m sitting here with my jaw on the floor – doctors with no bedside manners are the WORST. I’ve had a few – and fired a few for that very reason. I agree with Kristina – your baby boy is going to be perfect and beautiful. ((HUGZ!!)) Feel better soon – we’ve all been battling that same stupid cold and it’s very annoying. I think it’d be even more annoying while pregnant.
Stacy Uncorked´s last [type] ..Christmas Fun, New Year Drive Adventure and Back to Reality: RTT Rebel
Thanks Stacy! Yes he will
Get better soon!
Twitter ID: AimeeWrites
January 3, 2012 at 11:37 pm
Good Lord. What an absolutely ridiculous amount of crap to be put through!! So, yeah, I’ll totally be sending you lots and lots of calming vibes in addition to the healthy baby vibes.
Jenny’s post got me, too. For me, it was PPD, and it’s pretty much gone (just a little dip during my monthly visitor now and then), but I’m so proud of and amazed by her post. And by YOURS. Talking about it over and over and over is what will – finally, someday – remove the stigma from all of this. ((hugs))
Aimee´s last [type] ..Random Recapping
Thank you Aimee!!! Well said!
I cannot imagine what you’re going through but I’m hopeful that you will get the answers you need soon! Doctors can be helpful but it’s so hard to feel that way when they are jerking you around or when you cannot get straight answers.
Thinking about you and your family!!
Jamie´s last [type] ..Random Tuesday Thoughts
True. Doctors can be amazing or not so amazing. Thank you Jamie!!
Twitter ID: dailydribbles
January 4, 2012 at 9:11 am
Oh my goodness lady. That is a whole lot of crap going on!! I will be praying for you. Please keep us updated.
Kmama´s last [type] ..Four Christmases
Thanks so much!!
Twitter ID: beerandpie
January 5, 2012 at 7:05 pm
OMG, I am so very sorry for all that you are going through. You’ll be in my thoughts.
Thanks Hope!!
I haven’t been here for a while, so glad to see you are progressing in your pregnancy. I always remember what my wonderful doctor asked me when I was pregnant at 33. He asked if I wanted to test the baby for any abnormalities because of my “advanced” maternal age. I F.U.ed him in my mind. Anyway, my husband and I said we weren’t sure and asked his advice. He asked us if we found out there was something wrong with the baby, would we terminate. We said no. He said then why take the test? I said, wouldn’t we want to prepare. He said no, you’ll spend the entire pregnancy worrying and it won’t help. We didn’t have the test then or when I had another child at 39. I am thankful that I have such a great relationship with my ob.
It’s difficult finding an OB you are comfortable with who has to go looking at your vajayjay. I am praying that you find the strength to enjoy your pregnancy and not worry. Everything will be alright because even if your little man has challenges, he’s your little guy and it’s all good.
Oh, I forgot…you need a laugh right now! So, when I read your post I thought MTHFR was short for Mother F*cker. Haha. It sort of is an MF though.
All will be good, Cass. Hang in there!
Shevon´s last [type] ..Maki Sushi California Roll
Twitter ID: sublimelifeOG
January 21, 2012 at 1:39 am
Dang girl. I’m so sorry! I’m glad to hear you are taking the position of this baby is perfect no matter what. As an ASD mom, I can tell you it is so true. All kids come with challenges, it’s just a matter of what and when! I hope everything works out for you!
Jill´s last [type] ..Support
Twitter ID: anefallarme
January 26, 2012 at 1:41 am
Wow, some doctors can be so insensitive sometimes. I’m sorry you’re having bad days, I know everything will turn out alright and this is just another case of someone messing up something and making things wrong. I hope you find the right doctor who will give you the right answers.
Love and hugs!
Ane´s last [type] ..Random Tuesday Thoughts: Always Random